June 17 (Reuters) - For many U.S. parents seeking help
for a child with obesity, the most widely-endorsed treatment is
out of reach - and it's not the popular weight-loss drug Wegovy.
Leading medical groups recommend intensive behavioral
counseling - 26 hours within one year - to teach children and
their families practical ways to eat healthier and move more.
But these programs are not widely available, and wait lists
can run for several months. They are often not covered by health
insurance and require a time commitment that is difficult for
many families to make, according to interviews with more than a
dozen doctors and parents.
As a result, fewer than 1% of the nearly 15 million U.S.
children with obesity get this type of structured care, the U.S.
Centers for Disease Control and Prevention told Reuters. Efforts
by the CDC and others to expand insurance coverage have stalled,
doctors involved in the process told Reuters.
"The coverage for these programs was never good, and we're
not seeing any movement toward improvement," said Dr. Joseph
Skelton, a professor of pediatrics and an obesity medicine
specialist at Wake Forest University School of Medicine.
The prevalence of obesity among U.S. children has steadily
increased, from 5% in 1980 to nearly 20% now, according to the
CDC.
Novo Nordisk's Wegovy was approved for adults in
2021 and for adolescents in late 2022, offering a highly
effective way to lose weight for the first time. Novo still
cannot meet demand for the drug among adults, with at least
25,000 first-time prescriptions dispensed each week.
A much smaller, but growing, number of families are seeking
the drug for their adolescents, Reuters found in February. Many
doctors and parents are wary of using the medication without
data on whether Wegovy can affect a child's development, or pose
other long-term risks.
CHANGING HABITS
Ruth Medina of Holyoke, Massachusetts, wanted to see if a
change in family habits, rather than medication, could help her
15-year-old daughter, Jelainie, when she reached 200 pounds this
year. The family has a history of type 2 diabetes, she said, a
condition exacerbated by excess weight.
"I don't want to go down that path. That's when I got
scared," Medina said.
Jelainie's pediatrician recommended the healthy weight
program at Holyoke Health Center where children and their
parents come for visits with a dietician and community health
worker to set individual goals, plus group sessions about
cooking, deciphering nutritional labels and other lifestyle
changes.
Dr. Vinny Biggs, who oversees the program, said families
face a four-month wait to enroll. Medina and her daughter's
participation is covered, in part, by the state Medicaid health
insurance program, Biggs said.
At the family's first session this month, Jelainie cut up
cauliflower, carrots and other vegetables to prepare a paella
dish alongside her instructors. Mother and daughter said they
liked the meal and took home leftovers and the recipe.
Jelainie has lost some weight. She started walking more,
playing tennis and snacking on fruits and vegetables. Her mother
still worries about the appeal of the many fast-food restaurants
close to their home.
"We walk by so many temptations," Medina said. "I want to do
whatever I can to get her to a healthy weight."
RED LIGHT, GREEN LIGHT
The U.S. Preventive Services Task Force, an influential
federal panel of experts, says it's better to stick to lifestyle
changes for adolescents with obesity until more data on the
long-term safety and effectiveness of the drugs are available,
according to a draft recommendation published in December.
The American Academy of Pediatrics says that youth aged 12
and older should be offered medications for obesity, but only as
an "adjunct to health behavior and lifestyle treatment."
The task force examined clinical trials involving intensive
behavioral programs for children and found that, on average,
children lost 5.7 pounds.
But Wegovy and similar drugs helped people lose pounds more
dramatically - 15% or more of their body weight in clinical
trials. That track record, and a lack of insurance coverage for
counseling, are likely to convince more families to try the
medicines in the future.
Some doctors say that wider Wegovy use by youth will make it
even more essential for children to learn healthy-eating habits
for the long run. They worry that reliance on the drugs alone
could contribute to nutritional deficiencies or eating
disorders.
"Many of us believe it would make sense to offer behavioral
counseling along with the drug," said Dr. Thomas Robinson, a
professor of pediatrics and director of the Center for Healthy
Weight at Stanford Medicine Children's Health in Palo Alto,
California. "These drugs are very effective at reducing weight
and health risks, but you don't all of a sudden adopt a healthy
diet or become more physically active."
At Stanford's lifestyle-counseling program, instructors give
parents and their children long-established lessons about eating
wisely: High-calorie foods, such as ice cream or even almonds,
are "red-light" foods that should be eaten sparingly. Vegetables
are a "green light" - and can be consumed in unlimited
quantities. Most foods are yellow and fall somewhere in between,
Robinson said.
Health insurance doesn't cover Stanford's program, so
families pay out-of-pocket or receive financial assistance from
the hospital, Robinson said. The full cost is $3,500.
Since 2022, the CDC, American Academy of Pediatrics and
other key experts have pushed for better coverage of obesity
counseling. In September, an American Medical Association (AMA)
panel rejected one of those efforts: a request for a dedicated
medical code for the 26-hour program that would help providers
bill for their services.
In a statement, the AMA told Reuters the application didn't
meet the panel's criteria, without providing further details. In
general, new codes may not be approved if they include
non-clinical services, such as cooking classes, according to the
AMA. Even if a code is granted, health insurers can still refuse
to pay for medical services.
In a statement to Reuters, the CDC said that ensuring
equitable access to both obesity medications and lifestyle
treatment "is pivotal so that families have access to multiple
options to address child obesity and support optimal health."